WHO SHOULD COMPLETE THIS SURVEY?
This survey is for anyone in Ireland who lives with spina bifida and/or hydrocephalus, or for anyone who has a child/ dependant who lives with spina bifida and/or hydrocephalus
This survey has been funded by
The Hospital Saturday Fund
The reason we are collecting your data is to allow us to perform statistical analysis upon it which will provide us with information needed to better understand how spina bifida and hydrocephalus affects people in Ireland today enabling us to ensure that we provide an appropriate service. For this reason your data will anonymised and shared with the University of Limerick for statistical analysis.
By signing this form you are agreeing to SBHI retaining the information shared in this survey on our secure database system for a period of 5 years. You have the right to contact us at any point to request removal of your personal data from our database.
If you feel that your data protection rights have been compromised at any point you have the right to lodge a complaint with the data protection commissioner.
I agree that the information shared in this survey can be retained on the SBHI database.
I understand that my contact details may be used by SBHI to communicate relevant information tome.
I also understand that SBHI will never share my name or contact details with any third parties and that any information shared from this survey will only be done so anonymously.